Update

Has actually been a pretty slow day or two. All lines are out (no IV's or PICC's or anything going into him). He is in a big boy crib instead of a warmer and has been holding his own body temperature just fine. All dressings over his surgery sites are off. He is breastfeeding fine and even back to wetting his own diapers. We are only getting a few mL's when we cath, so maybe we can decrease the frequency of cathing (right now it's 8x a day). We are waiting to get circumcised still, which should make cathing super interesting (sarcasm font). He is only on vitamin supplements, no meds! All wounds look great and are healing just fine. He is gaining weight slowly. Head ultrasound didn't show anything of concern with his vents. So really we are just waiting on the discharge list. There are quite a few things to check off before we go and to get all the moving parts going in the right direction takes time, but there is definitely light at the end of the tunnel and that light is shining on our house! It's pretty miraculous to me that just a few days ago, his head was cut open and hardware was put in his brain and now we are already talking about going home!