Monday, August 11, 2014

Thomas is doing well

Not a lot to report. We are doing well so far. All wounds seem to be healing well and no signs of infection so far. Had some weight gain issues, but they seem to be resolved now and his little cheeks are starting to fill out. His awake time is getting longer and he seems more curious about everything around him, especially the two loud little boys that hover over him all day. Cathing is going ok. Our amounts are all over the place; some days it's a few drops while others can be almost 15mL. We are cathing every three hours still, which can make for long nights at times so I am hoping to call the urologist and see if we would be able to decrease the frequency of cathing. He is wetting diapers on his own, which is a change since shunt surgery and I would think that it is good news that he can empty himself, at least a little, on his own. He really makes it a challenge to cath him at times, he kicks his feet and shows his strength. At these moments I definitely get frustrated because I am so nervous about introducing infection and causing a UTI, that I am on edge during the process. When he kicks, sometime the catheter comes out a little and you can't push it back in since that would introduce bacteria, so we have to get a whole new catheter and start the process again, in this moment I have to remind myself that it is good he can kick and his strength is impressive given everything so my frustration needs to be put in it's place. We get stitches out next week on the 19th and have a follow up head ultrasound. Hoping for no news at that appointment. 

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